Dr. Raj Dasgupta & Carol Arnette: March 12, 2019

JUST SLEEPY OR SLEEP DISORDER?

JUST IN TIME FOR DAYLIGHT SAVING DAY – WHEN SLEEP IS TOP OF MIND

**SLEEP AWARENESS WEEK IS MARCH 10-16, 2019**

 

Dr. Raj Dasgupta

Currently an Assistant Clinical Professor at the University of Southern California

Carol Arnette

Mother of a teenage patient with narcolepsy

Sunday, March 10th marks the beginning of Daylight-Saving Time when we’ll “spring forward” as we adjust our clocks one hour ahead. For many adults and children, losing an hour of sleep will make them feel tired or groggy for a few days.  But it’s short-lived.  For others, fighting to stay awake during the day is part of everyday life. If that urge to sleep is overwhelming and irresistible, it may be narcolepsy.

Narcolepsy is often thought of as an adult sleep disorder.7 However, symptoms most commonly start in childhood or adolescence. 7 While the five major symptoms of narcolepsy are the same for children and adults, they can present differently.1,8 Misdiagnosis is common, and people with narcolepsy can experience symptoms for more than a decade before getting the right diagnosis. 6,7

 

DID YOU KNOW? 

  • Narcolepsy is not as uncommon as you may think. Approximately 1 in 2,000 people have narcolepsy and it is estimated about half of people with narcolepsy remain undiagnosed 1
  • More than 50% of people with narcolepsy say their symptoms started before age 18 6
  • Everyone with narcolepsy has EDS, but not everyone describes it in the same way. 2,3,8
  • On average, patients had six doctor visits before receiving a narcolepsy diagnosis5

Just in time for Sleep Awareness Week, sleep expert and TV personality, Dr. Raj Dasgupta, and Carol Arnette, mother of a teenage patient with narcolepsy, are available for interview to discuss:

  • Carol’s journey as the mother of a teenage daughter with narcolepsy
  • The difference between adult and pediatric symptoms of narcolepsy
  • When it’s time to see a sleep specialist
  • Where to go for more information

Visit www.MoreThanTired.com for more information

 

MORE ABOUT DR. RAJ DASGUPTA

Currently an Assistant Clinical Professor at the University of Southern California (USC) in the division of Pulmonary/Critical Care/Sleep Medicine, Dr. Dasgupta is quadruple board-certified physician. He has won numerous awards and frequently shares medical information and advice with various media outlets including television shows such as “The Doctors,” CNBC and CBS News.

MORE ABOUT CAROL AND CAROLINE ARNETTE

Carol’s daughter, Caroline, started to experience excessive daytime sleepiness (EDS), one of the five major symptoms of narcolepsy, in the 8th grade – most of which Carol assumed was “normal” teenage behavior.  In high school Caroline’s symptoms progressively got worse.  She sobbed from exhaustion and fought to stay home from school.  She felt embarrassed and depressed and isolated herself from family and friends.  Her cataplexy, also a symptom of narcolepsy, from laughter went from causing her body to slump to affecting her whole body and causing her to fall down like a marionette.  Carol and Caroline sought help from a sleep specialist and credits her diagnosis to ridding herself of the shame and guilt she felt for being sleepy all the time.

Interview is courtesy: Jazz Pharmaceuticals

1 Ahmed I, Thorpy M. Clinical features, diagnosis and treatment of narcolepsy. Clin Chest Med. 2010;31(2):371-381.

2 Ahmed IM, Thorpy MJ. Clinical evaluation of the patient with excessive sleepiness. In: Thorpy MJ, Billiard M, eds.

  Sleepiness: causes, consequences and treatment. Cambridge, UK: Cambridge University Press 2011:36-49.

3 Miglis, Mitchell G., and Clete A. Kushida. Daytime sleepiness. Sleep medicine clinics, vol. 9, no. 4, 2014. pp.

  491–498., doi:10.1016/j.jsmc.2014.08.007.

4 Dodel R, Peter H, Walbert T, et al. The socioeconomic impact of narcolepsy. Sleep. 2004;27(6):1123-1128.

5 Maski K, Steinhart E, Williams D, et al. Listening to the patient voice in narcolepsy: diagnostic delay, disease 

  burden, and treatment efficacy. J Clin Sleep Med. 2017 Mar 15;13(3):419-425.

6 Thorpy, Michael J., and Ana C. Krieger. Delayed diagnosis of narcolepsy: characterization and impact. Sleep

  medicine, vol. 15, no. 5. 2014, pp. 502–507., doi:10.1016/j.sleep.2014.01.015.

7 American academy of sleep medicine. Central disorders of hypersomnolence. In: The international classification

  of sleep disorders – Third edition. American academy of sleep medicine. 2014.

  http://www.aasmnet.org/ebooks/icsd3. Accessed February 28, 2014.

8 NINDS narcolepsy fact sheet. National institute of neurological disorders and stroke web site.

https:/www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Narcolepsy-Fact-Sheet. Accessed January 24, 2018.

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